Volumen 18 número 1 - Abril 2021
ISSN 0718-0918
Tabla de Contenidos > Trabajo Original
ATENCIÓN EN DOMICILIO DE PACIENTES NANEAS. EXPERIENCIA DEL HOSPITAL DE NIÑOS DR. ROBERTO DEL RÍO
Catalina Díaz M.1, Tabata Araneda M.1, Natalie Rodríguez Z.2,3, Karla Yohannessen V.3, Alejandra Sánchez L.2, Yoselin Villagra E.4, Carolina Heresi V.3,5
1 Becadas de Pediatría. Departamento de Pediatría y Cirugía Infantil. Facultad de Medicina. Universidad de Chile. Hospital de Niños
Dr. Roberto del Río
2 Pediatra. Unidad NANEAS. Hospital de Niños Dr. Roberto del Río.
3 Profesora Asistente. Departamento de Pediatría y Cirugía Infantil. Campus Norte. Facultad de Medicina. Universidad de Chile.
4 Enfermera. Unidad NANEAS. Hospital de Niños Dr. Roberto del Río. Neuróloga Pediatra. Hospital de Niños Dr. Roberto del Río.

Resumen | Abstract | Texto completo HTML | Descargar cuerpo en pdf

The advancement of life support technologies has increased the survival of children with serious pathologies and sequelae, categorized as NANEAS (Children and Adolescents with Special Health Care Needs) of medium and high complexity. At the Hospital de Niños Dr. Roberto del Río, a care team for NANEAS was organized in 2014, which has made home visits to medically complex patients since 2015.

Objective: To characterize the population attended at home and the care modality.

Patients and method: Retrospective descriptive study by reviewing the clinical file of NANEAS patients seen at home in this period.

Results: 581 visits were analyzed in 81 patients, median 8 years, 78% men, 63% institutionalized, 78% with neurological diseases. 75% were of high and medium complexity according to the SOCHIPE classification. Of the visits, 71% were in rural places, median travel time 60 minutes and direct attention 26 minutes. 60% of the visits were made to patients with medical devices, 99% attended by a pediatrician, 33% a nurse and 68% another professional, who in 61% corresponded to the child neurologist.

Conclusions: The highest proportion of patients seen are of high and medium complexity with medical devices and with underlying neurological pathology, so it is important to have a neurologist in the interdisciplinary team. Many of the visits are made in places distant from the hospital center due to the difficulty of transferring these patients. This modality of care promotes a better quality of life for medically complex children and their families.

Key words: home care, pediatric palliative care, children and adolescents with special health care needs.
Revista Pediatría Electrónica
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Correo electrónico: gmedina.uchile@gmail.com
ISSN 0718-0918